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Publisher's Summary

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. 

Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Powerful and passionate, Care Work is a crucial and necessary call to arms.

©2018 Leah Lakshmi Piepzna-Samarasinha (P)2019 Tantor

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What listeners say about Care Work

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Far exceeded my expectations

This book was the salve I needed, the mirror that gave me a rare reflection of myself that was both honest and someone I didn’t hate. Leah is a real, broken human and a goddess all in one. What a love.

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Read this book over the course of years (incredibly grateful)

I struggled through this book in the best way. I first picked up this book from the library about 4 years ago. At that time I could only get through the first couple chapters before inexplicably being unable to go on. Fast forward 2 years later and I got the audio book. 2 years after that, I finally finished. For me. Each chapter came progressively as I needed/was ready for it. I’m stunned, validated, challenged, and grateful.

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As Good as It Gets

Another crip friend of mine had rated it highly, she is also an avid reader so I knew it would be good. From a couple crips to whoever may read this, Care Work is an inspiringly real look inside our communities and justice movements and has a lot to say without ever losing its wit. Accessible and heartwarming, it is perfect for know-it-all crips and curious able-bodied folks alike and I hope you give it a read or listen.

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Inspired

The author gives a performance that is raw and inspiring to other sick and disabled people.

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Yes.

I thoroughly enjoyed this book… it provided a perspective that I wasn’t acknowledging or embracing. It was an enjoyable and informative listen and I look forward to listening again to glean more insights as I let this marinate.

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  • KM
  • 03-04-21

A beautiful story told with tenderness and care

This is my first time listening to Care Work and it was such an intimate and compelling tale of life. Life and all of the beautiful ways that humans adapt to live the best lives we can, with grace and integrity, love passion, care and pleasure. All the ways we both achieve that quality of living, and all of the ways we fall short, and every way and experience that we have trying to hold and build connections with others that remind us of our worth and power along the way.

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I just finished & ready to start again.

I finished listening in three days. It was wonderful to listen to the story narrated by the author. So much said that needs to be heard by a larger audience. I related in many ways, and also was engaged in listening to experiences I cannot relate to; narratives that are so important to be told by QTBIPOC. I'm very grateful for this book!

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the solidarity i needed

as a fellow nb crip, this book saved my life. it's the only one I could finish reading in fall 2020 and it gave me courage to advocate for myself/my friends

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Critical reading for EVERYONE.

This is beautiful, this is personal, this is exactly the perspective the world needs to be listening to and elevating right now. Leah does the most amazing job of making the extremely difficult work of telling community story through personal perspective (without being personally narrowed) look easy and flawless. Leah, you gave words to things I hadn't even fully faced in myself yet. Thank you. This work is priceless, and hopefully you are well compensated for it.

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Amazing

Wow this book means so much to me. There is so much I got to learn, so much that made me feel seen and hopeful, so much that pushed me to feel my experiences and desires more honestly. I will be coming back to this book many times. Thank you!

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  • Anonymous User
  • 09-30-20

Thank you for the crip knowledge

As someone that doesn’t identify as disabled probably because of some form of internalised ableism, this book has started me rethinking about my own neurodivergences, limitations, and super powers.

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  • Ella Motteram
  • 07-07-21

absolutely wonderful.

challenging without being brutal, honest and open without being gratuitous and graphic, its limits and potential highlighted without being harped on. listening to this feels like someone holding a space open for me.